http://www.rockinforautism.com/
Please sign up and follow us on our journey to find the missing pieces of this puzzle. Each year David and I put on a show called Autism Rocks that benefits the tri-state area families that can't afford therapies for their autistic kids that attend the Cincinnati Center for Autism.
We have set up this website for all the information on the show and also the sponsors that support us throughout this journey. Please take a moment and check us out! Also anyone wishing to donate gifts/services please fell free to contact me at catwomanoh77@aol.com.
From a mother with a son on the autism spectrum who wants to spread the word about autism awareness on how to recognize it and except it.
Tuesday, December 6, 2011
Friday, October 14, 2011
Wednesday, October 12, 2011
Heaven's Very Special Child
Apoem I really like:
In Loving Memory Of Curtis L. Hendley
Submitted by Leana M. Hendley
A meeting was held quite far from earth,
"It's time again for another birth."
Said the Angels to the Lord above,
"This special child will need much love."
His progress may seem very slow,
Accomplishments he may not show;
And he'll require extra care
From the folks he meets down there.
He may not run or laugh or play.
His thoughts may seem quite far away.
In many ways he won't adapt,
And he'll be known as handicapped.
So let's be careful where he's sent;
We want his life to be content.
Please, Lord, find the Parents who
Will do a special job for You.
They will not realize it right away
The leading role they're asked to play.
But with this child sent from above
Comes stronger faith and richer love.
And soon they'll know the privilege given
In caring for this gift from heaven.
Their precious charge, so meek and mild
Is Heaven's Very Special Child.
In Loving Memory Of Curtis L. Hendley
Submitted by Leana M. Hendley
A meeting was held quite far from earth,
"It's time again for another birth."
Said the Angels to the Lord above,
"This special child will need much love."
His progress may seem very slow,
Accomplishments he may not show;
And he'll require extra care
From the folks he meets down there.
He may not run or laugh or play.
His thoughts may seem quite far away.
In many ways he won't adapt,
And he'll be known as handicapped.
So let's be careful where he's sent;
We want his life to be content.
Please, Lord, find the Parents who
Will do a special job for You.
They will not realize it right away
The leading role they're asked to play.
But with this child sent from above
Comes stronger faith and richer love.
And soon they'll know the privilege given
In caring for this gift from heaven.
Their precious charge, so meek and mild
Is Heaven's Very Special Child.
We have started to put crunchy food(Comfort puffs) in his gerber cereal. He likes to count them as we crumble them in the cereal and then he likes to stir it up so they are mixed in well. We also are making the cereal thicker for he has better control of putting the food in his mouth. He also has learned to move the bowl under his mouth just in case he drips food down.
Sunday, September 18, 2011
Parker eats by himself for the 1st time
http://www.facebook.com/photo.php?v=2250483555101
Today Parker went to his baby party. There was all ages of kids there and plenty of activities to do there. At one point the kids sat at a table to eat snacks and Parker sat down and watched them intensively. Studying every move there were doing. He even feed a grape to one of the little girls at the table.
After we got home we sat down to eat at the dinner table and he took the spoon from daddy and started to feed himself. Of course just gerber cereal but it is a start!
Today Parker went to his baby party. There was all ages of kids there and plenty of activities to do there. At one point the kids sat at a table to eat snacks and Parker sat down and watched them intensively. Studying every move there were doing. He even feed a grape to one of the little girls at the table.
After we got home we sat down to eat at the dinner table and he took the spoon from daddy and started to feed himself. Of course just gerber cereal but it is a start!
Tuesday, September 13, 2011
The "F"word
So today my kid said the "f" word.Not sure where he learned it.....I'm guessing utube surfing so we are about to put some computer controls on his computer...
Sunday, September 4, 2011
Feeding with Parker
Parker has started school for the year. We are trying to get him used to letting anyone feed him. He is now excepting mommy and daddy feeding him. Meagan(CCA teacher) has even been able to sit at they table with us. So he is excepting others in his environment while eating. He also is accepting more different kinds of food now. He is still eating Gerber cereal but different kinds(rice,oatmeal,grain) ,also likes applesauce(pear, mixed berry,cinnamon) and trying to add banana baby food and pudding into the diet now. We keep a diary of everything he eats and how he eats it. Still we have to feed him with a rubberize spoon and his bowl.
Sunday, July 31, 2011
So Parker and his new obsession: UTUBE videos
He loves Queens Bohemian Rhapsody's first couple lyrics over and over he plays these
Is this the real life?
Is this just fantasy?
Caught in a landslide,
No escape from reality
Also Love Train by the O'Jays
People all over the world (everybody)
Join hands (join)
Start a love train, love train
People all over the world (all the world, now)
Join hands (love ride)
Start a love train (love ride), love train
He loves Queens Bohemian Rhapsody's first couple lyrics over and over he plays these
Is this the real life?
Is this just fantasy?
Caught in a landslide,
No escape from reality
Also Love Train by the O'Jays
People all over the world (everybody)
Join hands (join)
Start a love train, love train
People all over the world (all the world, now)
Join hands (love ride)
Start a love train (love ride), love train
Saturday, July 16, 2011
So Parker has started summer camp at CCA this summer. He enjoys going there. This will be the school he goes to next year to help him with life skills such as potty training and eating.This is our main concern for him right now,to be able to survive in this crazy world. Being 6 yrs old now he still doesn't eat out of a bowl for mommy , and for daddy every once in awhile. As for potty training he is curious when I go in the bathroom. I try to show and tell him "look mommy is potting in the big boys potty,can Parker do this?" He looks in the toilet and even hands me toilet paper and flushes with the lid down but has no intentions on doing it himself. If you try to put him on the potty he freaks out and jumps down. Now we did try the kids toy potty,he didn't want anything to do with that either. So we are trying a couple of tricks with him. I have learned with him if you make it a game he might try something once. So I let him watch utube video of spongebob singing about poop.So every time I try to put him on the potty I say poop! He is usually laughs at me. As for eating David goes into camp everyday and feeds him in front of the teachers to show them how to do it. But Parker has not accepted anyone else feeding him or even being in the enviroment around feeding time. You also can't talk to him while he is eating or he stops and says "all done" So for now daddy will feed him at school and eventually we will work into the teachers coming into the room and helping out, It will be a long process but I am confident we will conquer this.
Saturday, June 25, 2011
Sunday, June 5, 2011
Friday, May 27, 2011
Parker's new obsession: UTUBE. He knows how to turn the computer on and move the mouse on the desktop to internet explorer. Then he clicks it and then types u tube up and then clicks back button for he has watched hours of cartoons before so they are stored in the history. He loves the funny cartoons. His favorite ,spongebob singing soldier boy.....lol
http://www.youtube.com/watch?v=OghxueDXyrk
http://www.youtube.com/watch?v=OghxueDXyrk
Tuesday, May 3, 2011
Saturday, April 30, 2011
Interesting Article I Found on the Internet
The field of clinical nutrition has evolved into a practice that is increasingly incorporated into mainstream medical treatment. Clinical nutrition is the study of the relationship between food and the well-being of the body. More specifically, it is the science of nutrients and how they are digested, absorbed, transported, metabolized, stored and discharged by the body. Besides studying how food works in the body, nutritionists are interested in how the environment affects the quality and safety of foods, and how these factors influence health and disease.
It is believed by many reputable scientists, physicians and clinicians that there are generally two things that make people feel sick, toxicity and inflammation. Research over the years has also suggested that there is a real connection between what an individual eats, how they live their life and how they feel. For example, common foods, including nuts, wheat gluten, dairy products, fish, shrimp, soy, bananas, corn and eggs, can trigger allergic inflammatory reactions. If the proteins in these foods are not properly digested, they may create a dysfunction in multiple organ systems, including the brain and the gastrointestinal system. These manifestations are known as food allergies and sensitivities. In children, common symptoms may include frequent ear infections, repeated urinary tract infections and diaper rashes, continuous stuffy/runny nose and colds or upper respiratory infections, dark circles under eyes, hyperactivity or poor attention span. This condition is often seen in many individuals with ASD.
The immune system fights stress and toxins created by the environment and a person’s diet. When this system is overwhelmed, it can damage the metabolism and lead to certain diseases. A deficiency of iron can decrease immunity as well, limiting oxygen delivery to cells and resulting in fatigue and poor work performance. Iron intake is also negatively influenced by low nutrient density foods, which are high in calories but low in vitamins and minerals. Sugar sweetened sodas and most desserts are examples of low nutrient density foods, as are snack foods such as potato chips.
Iron is an integral part of many proteins and enzymes that maintain good health. In humans, iron is an essential component of proteins involved in oxygen transport. It is also essential for the regulation of cell growth and differentiation. Many think iron is a heavy metal, which it is not. Iron is an essential micronutrient. ‘Essential’ used in this way means that the body does not produce the nutrient; ‘micronutrient’ means that the body only requires tiny amounts to function.
lmost two-thirds of iron in the body is found in hemoglobin, the protein in red blood cells that carries oxygen to tissues. Smaller amounts of iron are found in myoglobin, a protein that helps supply oxygen to muscle, and in enzymes that assist biochemical reactions. Iron is also found in proteins that store iron for future needs and that transport iron in blood. Iron stores are regulated by intestinal iron absorption. There are people who cannot absorb iron very well or cannot make red blood cells normally, increasing the risk of becoming anemic.
There are two forms of dietary iron that people consume, including heme and non-heme. Heme iron is derived from hemoglobin and is primarily found in animal foods such as red meats, fish and poultry. Non-heme iron comes primarily from plant foods, such as lentils, beans, nuts, fruits, vegetables and is also found in grains such as rice, wheat and oats. While meat proteins and vitamin C improve the absorption of non-heme iron, many substances can reduce the amount of non-heme iron we absorb. These substances include tannins in coffee or tea, dairy, phytates (fiber found in legumes and whole grains), eggs and some types of chocolate. Calcium can impair the absorption of both non-heme and heme iron. Therefore if a person needs more iron, he or she should avoid these items to improve the amount of iron absorbed. But if a person has a problem of too much iron, he or she should use these items to help lower the amount of iron absorbed because excess amounts of iron can result in toxicity.
Meat contains both types of iron. Meat, especially red meat, is the best source of heme iron. When we eat meat we consume the blood proteins, the hemoglobin and myoglobin contained in the flesh of the animal. Plants do contain tiny traces of heme iron, but not enough to make a difference. Unlike heme iron, the iron from all of the non-heme sources is inorganic and must be changed before it can be absorbed. Heme iron is easily absorbed by the body and the best source of iron for people who are iron deficient. Iron deficiency decreases body temperature by decreasing norepinephrine and decreasing cellular oxygen, which contributes to the low-body-temperature problem in hypothyroidism.
The most recent scientific work suggests a connection with thyroid hormone dysfunction and various behaviors witnessed in those diagnosed with ASD. Healthy humans require iodine, one of the trace minerals and an essential component of the thyroid hormones, thyroxine (T4) and triiodothyronine (T3). Failure to have adequate iodine leads to insufficient production of these hormones (hypothyroidism), which affect many different parts of the body, particularly muscle, heart, liver, kidney and the brain. Thyroid hormones are closely related to all brain function and to pancreas function. Many studies have shown that attention deficit hyperactivity disorders (ADHD) in children are linked to changes in the levels of thyroid hormone in the blood, and that irritability and aggressive behavior are linked to thyroid hormone levels and hypothyroidism.
Other symptoms of an underactive thyroid (hypothyroidism), include fatigue, constipation, depression, low body temperature, memory disturbances, concentration difficulties, paranoia, migraines, over-sleeping and/or the inability to sleep due to gastrointestinal discomforts, anemia, “laziness” (no motivation), muscle aches and or weaknesses (e.g., low muscle tone), hearing disturbances, slow reaction time and mental sluggishness, labored breathing, hoarseness, speech problems, brittle nails, and poor vision and/or light sensitivity.
Once damage to the thyroid takes place it affects all the other organs, beginning with digestion and absorption. As toxins start to accumulate in the system, an array of symptoms can include high homocysteine levels, poor circulation (especially to the skin with as little as 20 to 40 percent of normal blood supply, resulting in a pale face), weight gain/weight loss, depending on the type of metabolism one had to begin with, no appetite or binge eating, bloating, fluid retention, skin problems (itching, eczema, psoriasis, acne, hives, and other skin eruptions, skin pallor or yellowing), aching joints, low blood pressure, high cholesterol and sensitivity to cold.
It has been shown that changing an individual’s diet produces a change in behavior and how they feel. For example, inflammation can be cooled by eliminating toxic foods and eating an allergy-free diet. Avoiding foods with refined sugars and flour, trans fats, hormones and pesticides, as well as gluten, dairy, eggs, corn and yeast is also key in reducing inflammation. The human body thrives on whole foods, fresh vegetables and fruit, whole grains and beans, nuts and seeds and lean animal proteins. An abundant supply of vitamins, minerals, and flavanoids (chemicals from vegetables and fruits), also improves skin health. These include vitamin C (as ascorbate), natural forms of vitamin E, selenium, magnesium, all the B vitamins, the omega-3 oils, and a diet rich in deeply colored vegetables and some fruits.
A well-balanced diet acts to provide sources of energy and nutrition for optimal growth and development. A balanced diet refers to intake of appropriate types and adequate amounts of foods and drinks to supply nutrition and energy for the maintenance of body cells, tissues, and organs, and to support normal growth and development. For a healthy diet, replacing unhealthy and fattening foods with healthier alternatives, such as fresh fruits and vegetables, is routinely recommended by clinical nutritionists
Read more: http://www.autismsupportnetwork.com/news/autism-and-defining-clinical-nutrition-wellness-38499302#ixzz1L0yLbQoZ
It is believed by many reputable scientists, physicians and clinicians that there are generally two things that make people feel sick, toxicity and inflammation. Research over the years has also suggested that there is a real connection between what an individual eats, how they live their life and how they feel. For example, common foods, including nuts, wheat gluten, dairy products, fish, shrimp, soy, bananas, corn and eggs, can trigger allergic inflammatory reactions. If the proteins in these foods are not properly digested, they may create a dysfunction in multiple organ systems, including the brain and the gastrointestinal system. These manifestations are known as food allergies and sensitivities. In children, common symptoms may include frequent ear infections, repeated urinary tract infections and diaper rashes, continuous stuffy/runny nose and colds or upper respiratory infections, dark circles under eyes, hyperactivity or poor attention span. This condition is often seen in many individuals with ASD.
The immune system fights stress and toxins created by the environment and a person’s diet. When this system is overwhelmed, it can damage the metabolism and lead to certain diseases. A deficiency of iron can decrease immunity as well, limiting oxygen delivery to cells and resulting in fatigue and poor work performance. Iron intake is also negatively influenced by low nutrient density foods, which are high in calories but low in vitamins and minerals. Sugar sweetened sodas and most desserts are examples of low nutrient density foods, as are snack foods such as potato chips.
Iron is an integral part of many proteins and enzymes that maintain good health. In humans, iron is an essential component of proteins involved in oxygen transport. It is also essential for the regulation of cell growth and differentiation. Many think iron is a heavy metal, which it is not. Iron is an essential micronutrient. ‘Essential’ used in this way means that the body does not produce the nutrient; ‘micronutrient’ means that the body only requires tiny amounts to function.
lmost two-thirds of iron in the body is found in hemoglobin, the protein in red blood cells that carries oxygen to tissues. Smaller amounts of iron are found in myoglobin, a protein that helps supply oxygen to muscle, and in enzymes that assist biochemical reactions. Iron is also found in proteins that store iron for future needs and that transport iron in blood. Iron stores are regulated by intestinal iron absorption. There are people who cannot absorb iron very well or cannot make red blood cells normally, increasing the risk of becoming anemic.
There are two forms of dietary iron that people consume, including heme and non-heme. Heme iron is derived from hemoglobin and is primarily found in animal foods such as red meats, fish and poultry. Non-heme iron comes primarily from plant foods, such as lentils, beans, nuts, fruits, vegetables and is also found in grains such as rice, wheat and oats. While meat proteins and vitamin C improve the absorption of non-heme iron, many substances can reduce the amount of non-heme iron we absorb. These substances include tannins in coffee or tea, dairy, phytates (fiber found in legumes and whole grains), eggs and some types of chocolate. Calcium can impair the absorption of both non-heme and heme iron. Therefore if a person needs more iron, he or she should avoid these items to improve the amount of iron absorbed. But if a person has a problem of too much iron, he or she should use these items to help lower the amount of iron absorbed because excess amounts of iron can result in toxicity.
Meat contains both types of iron. Meat, especially red meat, is the best source of heme iron. When we eat meat we consume the blood proteins, the hemoglobin and myoglobin contained in the flesh of the animal. Plants do contain tiny traces of heme iron, but not enough to make a difference. Unlike heme iron, the iron from all of the non-heme sources is inorganic and must be changed before it can be absorbed. Heme iron is easily absorbed by the body and the best source of iron for people who are iron deficient. Iron deficiency decreases body temperature by decreasing norepinephrine and decreasing cellular oxygen, which contributes to the low-body-temperature problem in hypothyroidism.
The most recent scientific work suggests a connection with thyroid hormone dysfunction and various behaviors witnessed in those diagnosed with ASD. Healthy humans require iodine, one of the trace minerals and an essential component of the thyroid hormones, thyroxine (T4) and triiodothyronine (T3). Failure to have adequate iodine leads to insufficient production of these hormones (hypothyroidism), which affect many different parts of the body, particularly muscle, heart, liver, kidney and the brain. Thyroid hormones are closely related to all brain function and to pancreas function. Many studies have shown that attention deficit hyperactivity disorders (ADHD) in children are linked to changes in the levels of thyroid hormone in the blood, and that irritability and aggressive behavior are linked to thyroid hormone levels and hypothyroidism.
Other symptoms of an underactive thyroid (hypothyroidism), include fatigue, constipation, depression, low body temperature, memory disturbances, concentration difficulties, paranoia, migraines, over-sleeping and/or the inability to sleep due to gastrointestinal discomforts, anemia, “laziness” (no motivation), muscle aches and or weaknesses (e.g., low muscle tone), hearing disturbances, slow reaction time and mental sluggishness, labored breathing, hoarseness, speech problems, brittle nails, and poor vision and/or light sensitivity.
Once damage to the thyroid takes place it affects all the other organs, beginning with digestion and absorption. As toxins start to accumulate in the system, an array of symptoms can include high homocysteine levels, poor circulation (especially to the skin with as little as 20 to 40 percent of normal blood supply, resulting in a pale face), weight gain/weight loss, depending on the type of metabolism one had to begin with, no appetite or binge eating, bloating, fluid retention, skin problems (itching, eczema, psoriasis, acne, hives, and other skin eruptions, skin pallor or yellowing), aching joints, low blood pressure, high cholesterol and sensitivity to cold.
It has been shown that changing an individual’s diet produces a change in behavior and how they feel. For example, inflammation can be cooled by eliminating toxic foods and eating an allergy-free diet. Avoiding foods with refined sugars and flour, trans fats, hormones and pesticides, as well as gluten, dairy, eggs, corn and yeast is also key in reducing inflammation. The human body thrives on whole foods, fresh vegetables and fruit, whole grains and beans, nuts and seeds and lean animal proteins. An abundant supply of vitamins, minerals, and flavanoids (chemicals from vegetables and fruits), also improves skin health. These include vitamin C (as ascorbate), natural forms of vitamin E, selenium, magnesium, all the B vitamins, the omega-3 oils, and a diet rich in deeply colored vegetables and some fruits.
A well-balanced diet acts to provide sources of energy and nutrition for optimal growth and development. A balanced diet refers to intake of appropriate types and adequate amounts of foods and drinks to supply nutrition and energy for the maintenance of body cells, tissues, and organs, and to support normal growth and development. For a healthy diet, replacing unhealthy and fattening foods with healthier alternatives, such as fresh fruits and vegetables, is routinely recommended by clinical nutritionists
Read more: http://www.autismsupportnetwork.com/news/autism-and-defining-clinical-nutrition-wellness-38499302#ixzz1L0yLbQoZ
Thursday, April 21, 2011
We have words!!!
We have been working real hard with Parker and his speech. Parker up to this year had really no vocabulary. He now knows over 20 words which include mommy,daddy, pop pop, mam maw, hat, cat, dog, hat, bubble, thank you, please, milk, juice, Becky, Thomas, Gordon, book, shoe, foot, eyes, nose, mouth,ears and the best of all I LOVE YOU!
Can you image hearing those sweet words from you child? The child that doctors told you that he would never talk?
Can we say screw you doctors? We will overcome autism and show the world life does happen if you make it happen.
Can you image hearing those sweet words from you child? The child that doctors told you that he would never talk?
Can we say screw you doctors? We will overcome autism and show the world life does happen if you make it happen.
Tuesday, March 29, 2011
Monday, March 28, 2011
Walk now for autism Cincinnati
http://www.walknowforautismspeaks.org/faf/home/default.asp?ievent=443166
Parker's Parade will be once again walking at Coney Island this year in May to spread awareness of the increasing numbers of autism cases. Every year we ask friends and family to donate and support us on our journey through this. If you would like to donate here is our team link PARKERS PARADE and it is tax dectutible. If you would like to join our team with us just email me catwomanoh77@aol.com. Rain or shine we will be there once again!
Parker's Parade will be once again walking at Coney Island this year in May to spread awareness of the increasing numbers of autism cases. Every year we ask friends and family to donate and support us on our journey through this. If you would like to donate here is our team link PARKERS PARADE and it is tax dectutible. If you would like to join our team with us just email me catwomanoh77@aol.com. Rain or shine we will be there once again!
Quirky things Parker likes to do
lines up things in a row vertical not horizontal
eats only from his bowl and his baby spoon for breakfast only
turns the tv volume all the way up or completely off
hides things, especially in heater vents
rubs his face against you or the dog
steals shoe tongues out of the shoe
plays utube on mommy's computer over and over and not watching video to ends
sniffs mommy's feet
takes all the batteries out of remotes for televisions
likes to dress himself over and over with different clothes each time
puts his fingers in his ears to muffle sounds
eats only from his bowl and his baby spoon for breakfast only
turns the tv volume all the way up or completely off
hides things, especially in heater vents
rubs his face against you or the dog
steals shoe tongues out of the shoe
plays utube on mommy's computer over and over and not watching video to ends
sniffs mommy's feet
takes all the batteries out of remotes for televisions
likes to dress himself over and over with different clothes each time
puts his fingers in his ears to muffle sounds
Friday, March 25, 2011
Friday, March 4, 2011
Meltdowns
I thought I would do an entry about Parker's meltdowns since everyone asks me what is a meltdown. For someone with autism communication is limited so if you can't get out what you need or are feeling, frustration sets in. With Parker I can tell when his meltdowns are coming now for he puts pressure on his cheeks with his knuckles and presses as hard as he can. He also likes to grab things and hug it and jump up and down violently to the point he bangs his head against things. We talked about eventually maybe getting him a helmet so they poor kid doesn't have brain damage. He also gets alittle violent with people. If he is frustrated he likes to kick ,scratch,squeeze and even choke people. Right now we can control this and don't see a reason to put him on medication for that. I know some kids require medication for the have other issues involved with their autism.(ADHD,Schizo,bi-polar,etc) His meltdowns usually don't last more than a minute but we have had some that lasted 2 hours of crying and kicking. We have learned that when he has a meltdown we try to calm him down first, if that don't work then we direct his attention to something he likes. For instance turning on cartoons, playing trains, or even utube on mommy's computer. Directing his attention to something else usually helps and he calms down.
The reason I decided to write this entry about meltdowns is for people who don't understand us unless they have been through it in their lives. They like to judge us, for they think we have a bratty kid that I can't control. Even school called me one day and said that they can't calm him down. What you don't understand , people can be very jugdemental and maybe someday this epidemic will have more research and understanding. That's why it is so important to get the awareness out about Autism for right now it's the fastest growing disease in the world now even over cancer and AIDS.
The reason I decided to write this entry about meltdowns is for people who don't understand us unless they have been through it in their lives. They like to judge us, for they think we have a bratty kid that I can't control. Even school called me one day and said that they can't calm him down. What you don't understand , people can be very jugdemental and maybe someday this epidemic will have more research and understanding. That's why it is so important to get the awareness out about Autism for right now it's the fastest growing disease in the world now even over cancer and AIDS.
Saturday, February 19, 2011
THE "F" Word
So as of January 31st Parker has been sick. It started out as a fever with vomitting. We were staying at a hotel for the night after the Autism Rocks Benefit. During the benefit he got alittle antsy for the babysitter and started to have a meltdown. So she took him to the hotel to calm down abit and maybe rest. Not my son he wanted to watch cartoons. So after awhile he felt alittle better to come back to the benefit. Well, that night was the start of this damn virus. We had to go get him some childrens advil for his fever. I did notice he was holding his throat. For a kid on the spectrum that has no communication skills he can't tell me where it hurts. A couple days went by and he was still so lifeless laying there in his bed so we called the doctors. They diagnosed him with flu like symptoms but didn't want to call it the flu. Well what the hell would you call it then? ( We did get him his flu shots this year!) So we kept him home 48 hours from school just to be safe. Each day is different one day he is great the next he is back feeeling like poop again. Seems like when we give him his advil his meanness and fever goes down and he starts feeeling better. But once it wears off watch out! I don't want to keep having to dope my child up to make him feel good. Especaiily when he hates taking the medication. Now for mommy hey throws it back up but daddy can get him to take the liquid and keep it down. His symptoms are coughing, runny nose, soar throat,fever,constipation and lack of appetite. Now in the mean time mommy starrts to get sick. Different symptoms though. Mommy thinks hers was sinuses for she didn't have vomitting or fever. I am on day 19 of this crap. Ok now daddy is feeling bad and vomitting and has diarrhea. Something has to be going around that all 3 of us have this crap.
Tuesday, February 8, 2011
That day in the hospital
It all started on March 2nd, 2005. Parker was due to visit Feb. 28th so I guess you can say the turkey was done. Actually, he was a little underdone. They told me I was having a 7 lb. baby when he was only 5.12 lbs. I had a doctors appointment at noon that day to check to see if my cervix was opening at all. At that point my water hadn't even broke yet. I did feel contractions but I was worried that they might be Braxton Hicks. So about 9 am I felt the contractions coming a little harder so I decided to call the doctor and he told me to goto the hospital. On our way to the hospital we had to stop for gas, really? Who would of thought knowing your due anytime to keep a full tank of gas just in case. While Daves pumping gas , I'm screaming from pain, I knew this baby was coming. So I tried to do the whole find your focal point lamaze crap. That wasn't for me....so I decided to do what I knew best....dog names. So here I am screaming over and over types of dogs names and I'm sure to guy pumping gas next to us is wondering what the hell is going on. So off to the hospital ,which is about 20 miles away praying I don't have this kid on the highway in a snow storm. Poor Dave, I'm screaming at him to hurry and telling him to speed and I'll pay the speeding ticket if we get pulled over. So we finally get to the hospital and they wheel me in through the front lobby where everyone stares at the pregnant woman about to give birth. We get back to the room and they hook me up to the monitors and we see the baby is stressing. At this point my water hasn't broke or my cervix still has not opened. He is stressing to the point he has a bowel movement inside me which results in a meconium baby. So with him stressing and his heartbeats not going up or down with medication given they decide its time for a C-Section. I also had preclampsia. So they roll me into the operating room, hook me up give me not 1 but 2(spinal block) epidurals for the first one didn't kick in. Now personally I think the epidurals hurt more than labor pains. So here we go lets have a baby! Funny story while they are operating on me i'm still saying over and over again beagles, dalmatians, rottweilers, etc. and I hear the doctor ask Dave what is she talking about....lol I scream this is my focal point! Another funny story about the operation is the doctors named their tools girls names so they know all tools that go in must come back out. I hear Kelly and I said"yes" he laughed. So after 2 hours of labor I don't hear a cry. I wonder while doped up why I didn't hear my boy cry. There is a reason for that. They didn't want him to cry for he swallowed some of the meconium in his lungs which could be fatal. So they rushed him off to another room to put him under an oxygen tank to help him breathe. So they kicked Dave out of the operation room while they stapled me up, so he went to check on Parker. He was so little and fragile that he couldn't hold him yet. It wouldn't be till 4 days later that we are still in the hospital that daddy can hold him now. I was alittle upset and depressed that since I was still hooked up to my monitors (due to blood pressure problems) I couldn't see my son till 4 days later. They wouldn't even bring him to see me for he was still fragile and on oxygen. So when I finally got to meet my son for the 1st time I was happy to be with him but feeling sad for another family in the room with their child. I knew it wasn't good when they were talking about moving their kid to Childrens downtown and that there was a priest in the room. So I felt sad that here I am enjoying my newborn son and they were holding on for dear life for theirs. Day 4 was better he got to come and stay with me in my room. I layed in bed with him feeling this was the best thing that has ever happened to me. I didn't want him to leave my bed!
Well throughout my stay at Mercy Fairfield the nurses were nice to me knowing I was a 1st time mother showing how to do things right. I was a little perturbed that I had to move to 3 different rooms for I was there so long. Not to mention we got no help moving to each of the rooms.We moved our own luggage to each room. Day 5 got better though. I was still hooked up on my machines for blood pressure problems so I really couldn't go anywhere. At this point I was ready for a real bath not a sponge bath that these nurses give you. Day 7 was a funny day. This was Dave's birthday. He had to leave me in the hospital to go get his plates renewed so we could leave the hospital but the nurses told him that he can't leave me alone so we had to find someone that could stay with me and the baby. My family is in NY, Dave's family was out of town, and my friends were out of town too. There is a tv in the room but no remote so I had to watch what ever was on the one station that played. As Dave was leaving to get his plates renewed the fire alarms go off. I'm thinking damn Dave what did you do now. Well what it was was a real fire 2 windows over from me. So I panicked for nobody was evacuating the hospital. The nurses said it was no big deal, someone got caught smoking in their room. Ok heartache, at least I'm in the right place if that happens! So Dave makes it back to the hospital and we are cleared to check out, then the bitch(Linda Collins-Butler County child services) comes in wanting me to sign papers stating since I was still legally married to my ex husband Matt I have to put him as the father of the baby. Also she crossed out all Davids information that I put down as father of the child and she also crossed out that I stated I didn't want a SS# for my son. Now why would I not want a ss# for my son. She lied! Which in Parkers first year of his life made it hard for me to get insurance coverage for supposedly having an illegal alien. So i didn't sign her papers, I left the fathers name off the birth certificate and told her she will hear from my lawyer. She tried her hardest to get me to sign those papers to the point my blood pressure shot up again and here we go all over again. So her stressing me out and making my blood pressure go sky high they wouldn't release me from the hospital. So here I am stuck again in a hospital room that I am paying for by day because of this cunt.( I don't use the word to often but she deserves it for what she did to me) So by the end of the day I get my blood pressure under control and once again they release me to go home.
Parker David Kahle came into this crazy world!
March 2nd, 2005 at 11:09am
5 lbs 12 ounces and 18 in long
Well throughout my stay at Mercy Fairfield the nurses were nice to me knowing I was a 1st time mother showing how to do things right. I was a little perturbed that I had to move to 3 different rooms for I was there so long. Not to mention we got no help moving to each of the rooms.We moved our own luggage to each room. Day 5 got better though. I was still hooked up on my machines for blood pressure problems so I really couldn't go anywhere. At this point I was ready for a real bath not a sponge bath that these nurses give you. Day 7 was a funny day. This was Dave's birthday. He had to leave me in the hospital to go get his plates renewed so we could leave the hospital but the nurses told him that he can't leave me alone so we had to find someone that could stay with me and the baby. My family is in NY, Dave's family was out of town, and my friends were out of town too. There is a tv in the room but no remote so I had to watch what ever was on the one station that played. As Dave was leaving to get his plates renewed the fire alarms go off. I'm thinking damn Dave what did you do now. Well what it was was a real fire 2 windows over from me. So I panicked for nobody was evacuating the hospital. The nurses said it was no big deal, someone got caught smoking in their room. Ok heartache, at least I'm in the right place if that happens! So Dave makes it back to the hospital and we are cleared to check out, then the bitch(Linda Collins-Butler County child services) comes in wanting me to sign papers stating since I was still legally married to my ex husband Matt I have to put him as the father of the baby. Also she crossed out all Davids information that I put down as father of the child and she also crossed out that I stated I didn't want a SS# for my son. Now why would I not want a ss# for my son. She lied! Which in Parkers first year of his life made it hard for me to get insurance coverage for supposedly having an illegal alien. So i didn't sign her papers, I left the fathers name off the birth certificate and told her she will hear from my lawyer. She tried her hardest to get me to sign those papers to the point my blood pressure shot up again and here we go all over again. So her stressing me out and making my blood pressure go sky high they wouldn't release me from the hospital. So here I am stuck again in a hospital room that I am paying for by day because of this cunt.( I don't use the word to often but she deserves it for what she did to me) So by the end of the day I get my blood pressure under control and once again they release me to go home.
Parker David Kahle came into this crazy world!
March 2nd, 2005 at 11:09am
5 lbs 12 ounces and 18 in long
Monday, February 7, 2011
Walk now for Autism
2011 Cincinnati
Walk Now for Autism Speaks
Saturday, May 21, 2011
Mark your calendars! Our 2011 Kick Off has been scheduled for Saturday, February 26th at Springdale 18: Cinema De Lux. The event will feature:
Fundraising Fair 9:30am-10:30am
Presentation 10:00am-10:30am
Showing of HBO's Temple Grandin 10:30am-12:00pm
Fundraising Fair Re-Opens 12:00pm-12:30pm
Parkers Parade will be marching again this year at Coney Island to raise Awareness for Autism. This will be our 4th year marching. Each year it gets bigger and bigger so that tells me the number of children being diagnosed on the spectrum is on the rise. We have set up a donation page if anyone would like to donate goto:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=443166&supId=212492147
or join our team and walk for autism awareness!!
Walk Now for Autism Speaks
Saturday, May 21, 2011
Mark your calendars! Our 2011 Kick Off has been scheduled for Saturday, February 26th at Springdale 18: Cinema De Lux. The event will feature:
Fundraising Fair 9:30am-10:30am
Presentation 10:00am-10:30am
Showing of HBO's Temple Grandin 10:30am-12:00pm
Fundraising Fair Re-Opens 12:00pm-12:30pm
Parkers Parade will be marching again this year at Coney Island to raise Awareness for Autism. This will be our 4th year marching. Each year it gets bigger and bigger so that tells me the number of children being diagnosed on the spectrum is on the rise. We have set up a donation page if anyone would like to donate goto:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=443166&supId=212492147
or join our team and walk for autism awareness!!
So I decided to start a little journal about living life with autism. As many of you know I have a 5 yr old son named Parker who is on the autism spectrum. His actually diagnose is PDD-NOS with sensory integration. He was diagnosed at 2 yrs old but mommy and daddy knew something was up earlier than that. Even mommy's friends who were afraid to say anything to her noticed Parker was "different". How we first noticed he was "different" as a child he would spin things for hours, line up objects, flapping of the hands, lost in space, no eye contact, no speech ,no sense of fear, sudden outbursts of cries and meltdowns, sudden giggling for no reason. The list could go on forever! Each autistic child perceives their world differently. So what did we do? We took Parker to his pediatrician and asked him(Dr.T) what he thought. He said to us within in 5 minutes of meeting Parker"I don't doubt that he is on the spectrum but lets get him tested at Cincinnati Children's to be sure." So off to Children's we go.......So our first appointment with children's we actually got in there( is always a long waiting list for kids to be tested for anything) ,but David had a family member that helped us by passing the wait. So they put us in this room and made us wait, which anyone with an autistic child knows they don't have alot of patience, then at least 5 doctors or therapist come in the room to test Parker. They do a series of tests to see what his skills are at this age level. Of course he scored low. So their recommendation was occupational therapy and speech therapy. So we signed on board for some help knowing we couldn't do this alone. So the first thing was signed up for with Children's was occupational therapy. In occupational therapy the child learns to trust therapists and get used to them. He also learns how to use his senses(touch,hear,speak,taste,seeing). Well the one thing I love about Parker is he is a very affectionate kid. Alot of autistic kids don't like to be touched or don't show emotion. NOT my son....he loves hugs! As for speech there was none at this time and he didn't even want to try and work on it at this time. Seeing got better, we now have full eye contact from him even though he plays games like "you can't see me ,I can't see you"...lol As for taste that's a whole another chapter of his life. Parker doesn't eat table food. Everything he eats which isn't much has to blended in a blender and put into a baby bottle and he will drink it that way. Now he does get more nutrients then most 5 yr olds for he loves his veggies and meats but it all has to be blended to liquid so it may pass with no problems down his throat. Now we though this was a little strange a kid didn't want to put food in his mouth. Actually he didn't put anything in his mouth which was great. We never had to worry about him putting things from the floor in his mouth. He never had the sensation to. So we asked Children's have they ever seen this. The told us yes and that we should get tested to see if it was a physical issue with his mouth. So back in the car and off to Children's again. This time to do a video swallow to see what he is doing on an xray with his food in his mouth. So we had to force feed him with a spoon which he hates and watch the food on a monitor to see what happens. He eventually swallowed it but the doctors did note that he does keep food in his mouth longer than it should. Maybe the fear of swallowing scares him? He also gets hiccups alot and really bad. Maybe keeping air to long in there too? So that's where speech therapy comes in next. So back in the car off the speech therapy at Children's. Speech therapy at Children's in my opinion was a waste of time for us. Now I'm not saying that for all kids just mine. During speech ,OT therapist and speech therapist decided that they would work together with Parker considering my insurance at work only covers 20 days a year for OT. My insurance company doesn't even cover speech so this was a way for us to bypass and get some relief on the bills. At $200/hr I can see why the divorce rate and debt is so high in couples that have kids on the spectrum. It is alot of stress on us as a couple but somehow we managed to make it work for the little guy. Someone once said to me that god only gives us what we can handle. And I truly belief that god gave me this special little boy for a reason whether it be to slow me down in life,teach me a lesson or fill a void, he's here and I wouldn't trade him for the world! Ok enough rambling on, back to therapy class at Children's....we would get Parker used to swings which he loved. He also loved jumping on the trampoline. Other things that we worked on in therapy was dealing with his sensory integration. For instance, he didn't like touching certain textures. We would work on that by putting different things in front of him like toys, food, snacks, pudding, playdoh, sand, beans,water. Eventually he did touch somethings but by then my 20 days of coverage was over. As for speech during therapy they tried to get him to use the PECS system. What that is, is pictures of objects on cards and he would have to hand me the card of the thing that he wanted.....HAHHAHA He didn't want to do that either. He would throw the cards all over the floor. So they suggested maybe sign language but both daddy and I agreed that we didn't want to go that route for I didn't want Parker to use that as a crutch. If he was ever going to talk I didn't want him to use sign language as the crutch. So we as parents decided to let him learn some speech through educational cartoons like Word World. One thing Parker really likes is his tv so we figured we can teach him things through television. Most parents and doctors probably would have a stroke on how much tv he watches but he has learned alot from the tv. Plus we don't allow him to watch just anything. Funny thing about his sensory integration, certain tv shows or cartoons set him off to a meltdown. For instance, Mickey Mouse. He can watch mickey with the volume off but if he hears the hot dog song or hears a song that he knows the cartoon is ending then he has a meltdown. We thought it had to do something with the volume being to high but then he loves to turn the volume all the way up on some cartoons especially if the cartoon has a song or jingle playing. We used to laugh at the George Lopez show for he would turn Low Rider up as high as he can get it. I always wondered if the neighbors could hear our household and what they thought. Other things we worked on was puzzles for hand/eye coordination. He mastered them completely! We also worked on touching things more and more. We worked on pretend play like driving the cars into the garage. He LOVES Thomas the train. For Christmas this year he got mostly Thomas the train items plus thanks to ANDY he got Thomas the train trains and tracks which he as we speak has setup all over the living room. As he plays with his toys he also wants to watch the cartoon so we pop in the cd Thomas and you want to see the biggest smile on a childs face! Other things we worked on is the trampoline.We now have one in our house and he loves to jump really high on it. He even likes to do tricks on it too. Funny story about jumping.....When he was a baby we went through 2 crib mattresses for he jumped so much he went through the mattresses. He also jumped one time right out of the crib on us. Sometimes he will jump for hours and at odd times of the day/night. I remember waking up about 2am one night and there he is jumping away.
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